My name is Jaya Pandey and I live in Franklin with my husband and sons. I have two boys ( Ajey 20 and Anand 17) My younger one has Autism.
For years, I have been working on raising awareness about Autism, specially in Indian community. Help me building a community for Indian Moms with Special needs kids.. My idea is all about Moms helping other moms and be each other's resource person.
Come Join me finding a friend for special need moms.
dinner our can bring out some conflicting emotion to surface and make you
realize how the whole “strong mom” can go downhill in no time.
could remember the same incident couple of years ago and I avoided writing
about it but this time it must be out.
has been waiting for his YMCA leaders rally for couple of weeks now. He was
very excited, I am sure he was nervous at the same time.
Sunday the bags were packed and put away. So not like his mom, doing things
till last minute. We didn’t talk about it too much because neither of us knew what
Friday when we dropped him to take the bus the camp my heart sank just a little
but swell with pride. My son was going away for two nights and he followed the
instructions and packed his stuff. He was excited and nervous at the same time
but he tried not to show it. At the same time his brother was taking bus home.
After picking up Ajey we decided to eat out just like that. In that nice restaurant,
it suddenly hit me how easy it was to just randomly do something. Nothing to worry
about, the conversation flew so easily among three adults, we made joked, took
pictures and talked about various things in our life. Suddenly I realized we didn’t
have that for such a long time. Eating out was always all about picking a restaurant
Anand would like. The dish to order, sensory overload, too many people or just
the rush to finish the dinner.
I got a picture of pizza slices and I knew he was happy and enjoying his meal
and suddenly I was in much better place but the guilt of enjoying a hassle-free
meal remained with me for a long time. I struggled justifying it finally I gave
in. It was time for being a mom to Ajey and not worry about anything else.
thought I was over this but no I cannot be. Talking to a friend today about it
was as harder as living that. I thought it has to get out and some of you would
be able to understand that its not easy to compartmentalize our relationships
with our kids.
At the center, ready to board the bus. He didn't want to do anything with his photographer mom. I was happy with the back shot.
He was happy with Pizza and Soda for his dinner. That ONE text made my day.
Having Ajey with us was so different.
The mother in me finally gave in and enjoyed the time with my first born.
We picked up Anand back on Sunday around 3.30. He was away for good 48 hours. I heard few things about camp, hopefully soon I will get the whole picture.
He grew so much in two days I felt. I got a hug and he carried his bags to the car.
Below are the pictures from June 4th, 2016 - Ajey's Bday. Anand was at volunteer event and 3 of us went for lunch. I couldn't post these pictures, had trouble looking at them.. thinking how could I be so happy without Anand. Finally today I am OK posting them and telling myself.. its OK to be Autism free once a while.
on my way to the city, all I could think of “1 in 52”. Playing in my head over
and over again was how important it was to be in State House today, how
important advocacy, our voice, our kids’ voice, a research to find answer and
everything else to have our children live in better world. Walking through Boston
Common a woman complimented me on my Saree and I couldn’t wait to respond her
that I wore “blue” for Autism Awareness and Acceptance day. She was quicker to
respond that her cousin is autistic. Somehow, we just felt connected. Just like
that - one sentence changed us from stranger to friends.
room, Today I witnessed the power of perseverance, the power of mom’s will, the
support of friends, the agony of a dad and above all the desire to do more for
I met some
old friends and made some new. My blue saree sure drew many compliments but at
the same time It carried a message. That it is time we all come together and
find some answer, let law makers hear our concern and take this epidemic
Listening to two self-advocates was the reminder that sky is the limit, Our kids have every right to dream and achieve what they want.
1 in 52 -time to do more.. More advocacy, more
research and acceptance.
The State house, Boston
The cutest advocate -
was there to voice her concern on behalf of her brother.
The best hair
accessory in the world.
This handsome man was
there to support his brother and accompanied her mother today.. Advocacy has
no age bar..
A room full of
advocates, families and self-advocates in the state house was a heartwarming
Senator Michael Moore.. A champion for families with Special needs.We need more of them.
Amy winestock and Senator Barbara L'Italien. Both of them are true champions. They inspire moms like me .. every day, Not only for their own kids, they tirelessly paved the way for others.
The moms who gave motherhood
a different meaning.
Bedford Chief of Police, Robert Bongiorno – a dotting dad who wants the best for not only his daughters but for all of our kids, call your police station and ask if they have received the training for special needs families.- TODAY..
Michael Borr AFAM Executive
Heather Hegedus, a
mom and a wonderful MC today, with the best photo Bomber one can ask for. The Amazing