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Showing posts with label #autism #Autismawareness #MySonRocks. Show all posts
Showing posts with label #autism #Autismawareness #MySonRocks. Show all posts

Monday, July 20, 2020

Memories - lets create some - not only for me but for everyone

I have always been about making memories - it can be in form of stories, poetry, ghazals, sarees or pictures. Everything matters when it is associated with people and a specific time in our life.
My dad always loved taking picture and was very good at it. When I got my first digital camera, he was the first person I thought of. I did get this from him, a passion for taking photographs but not of landscape or nature. I am all about people, faces and emotions.
Unfortunately my men are not much fans of any side of the camera, but that didn’t stop me. I did whatever I wanted and whenever I could. 
Our India Photo shoots have been discussed and talked about plenty and that gave me an idea. I wanted to do that for the families who couldn’t go to the studio for photo shoots or have a photographer come home.
All these simple tasks are tough for families with special need children and an idea was born. I offered the families that I would come to their homes and take their pictures.
Some were happy, some were skeptical and some agreed.
I have a simple DSLR camera but that is good enough to create some amazing memories. 
I hope I do create some memories for you while making some for me. I don’t only take pictures I get some stories, learn something new about human behavior and thoroughly enjoy the process in doing what I love. Stay tuned.
#MomLovesAnand #desimomsNetwork #Memories 

 My dad, My hero - This project is all about him in many ways. Camera and giving back where it is needed most. Papa in Goa..(Nov 2018) happiest him - Ocean, his first born (me), walk on the beach and camera 


Pics of backyard all set up for socially distant photoshoot. I found it very difficult to not hug and kiss that cute kid that evening, a hug to another darling girl who is good to Jaya Auntie. I could play with her hair, put some flower on it or just give her my camera to play with. It was a very hot Saturday and there was no breeze but we all survived. see the lights magic. It was wonderful to see two new familes meet and connect. 






Wednesday, May 29, 2019

Walking into a meeting totally unprepared.. and you come out .. just happy beyond words.

It was one of those rare incidents when I didn’t know what to prepare for this meeting. I have never found myself so clueless, didn’t have any plans as to what to ask and specifics to talk about. All I walked in with was one wish, a little information session for moms about DDS.(Department of Developmental Services )
A drive from Quincy to the DDS office in South Boston, the drive so awaited and beautiful. I had thought I would stop and sit on a bench overlooking the lake for 15 minutes before I drove in, have been meaning to do that every time I cross Rt 3 Malibu beach area in Dorchester, but rain made me change my plan. A rainy afternoon and a weird mood swing, I just drove not knowing what to expect. While parking I noticed the very French restaurant I so wanted to visit  in South Boston and made a mental note of stopping there after my meeting.
The garage guy told me it would cost me $7 for two hours and I thought even though I am early I would still have at least 30-40 minute at the restaurant. A glass of wine would be nice before the long ride home.
I walked in and was pleasantly surprised with the office atmosphere. The decor was very pleasing and calming. Somehow it just made me feel welcomed. Soon I was asked to come into the meeting room. I was to meet DDS commissioner Jane Ryder. I had met her last year in a federation conference. Not sure if it was my work or my saree but she could recognize me when we met this year again on April 2nd at the Massachusetts State House. . Again the blue saree started the conversation.

Today I was to meet her and her team to get some help for my Moms Network. I assumed that I would be there for 30 minutes but once we started talking there was no stopping. I forgot that I was in the room with 3 top DDS people, all I noticed were people who wanted to help, were eager to know more about us and ready to find the best way to find the best solutions and provide the help DDS offered. After so many stories and conversations she actually gave me way more than I had expected. I was expecting one speaker for one of the dinners I organize for the Moms for an hour or so, but she offered beyond that. They all were so empathetic and willing to help us and make our life easier. I shared pictures of my boys, shared stories from Moms network, gave them a glimpse of our culture and upbringing and our own struggle to get over the disappointments we all have in our life.

Jane has a brother with needs, actually that’s what I remembered from her speech in that conference.  For me the sister in her will always be more powerful and appealing than the commissioner in her. Her Deputy- Elizabeth and Director of Family Support - Margaret were so supportive and full of ideas. With the 3 of them around,I felt so heard and appreciated. They were very kind not only to provide the education and support but space as well to host the information session. 
I so wanted to be mindful of their time but they were very patient, welcoming and attentive listeners . I wrapped up way later than my allotted time, thanked them and took a picture with Jane and Elizabeth. Walking out of that building I could feel nothing but gratitude and just pure happiness. I was so excited and happy that just wanted to drive back home. Gaslight dinner and wine could wait for another trip. On my way home I couldn't wait to share all the details with Ashish. When I walked in after a very long and rainy drive I was glad I skipped the french dinner as I come back to a home made Indian dinner with white wine waiting for me. Sometimes it is wonderful to be treated as a queen when you live with 3 men.

Today its all about #lifeisgood #gratitude #thankfulness



 Standing next to Jane I so missed my village, Please know each one of you were in my mind.

Elizabeth Morse - Deputy Commissioner DDS she is working on making it easier for families to access services. Missed having Margret in our picture. Elizabeth and M both took notes while listening to our stories.I didn't care how I looked after a long day but the happiness is my make up for this picture.

The first meet in Federation conference March 2018


  And then we met again in April 2019 at state house. Thank you for your time Ms Ryder. 



Gaslight, I will be back soon, last night it was worth coming back home too. flowers and food from a friend and wine from the man. I couldn't have asked for anything better  even after long drive back home which I enjoyed, the phone calls to some moms and friends helped me ignore the crazy traffic.




Thursday, May 9, 2019

A Gala - to support who support our loved once.- Triangle Inc.

After a very long day I was just not sure if it was the right thing to do. When I was packing last night for today’s event, I was certain about a blue saree but packed a dress too just in case. I leave home very early when I go to work and after an hour and half of commute and a full day at work , when I got out at 4, I wasn’t sure about my choice of attire for the evening. A dear friend graciously offered her place to change and a nice cup of tea. I think it was that tea which helped me bounce back to my usual self and I was ready to rock in that beautiful blue saree.
It was Triangle Inc.’s 48th annual award ceremony and fundraiser. John F Kennedy museum and library was a beautiful venue on a perfect day for a wonderful cause.

Triangle’s moto is “Employment. Empowerment. Independence. Our services help individuals with disabilities to find careers, become self-advocates, and live independently”. I didn’t know much about them until last week. State Street supports many organizations and had a table at the event. I decided to join the team and I am so glad I did. I knew that it would be a very long day but it was well worth every minute I spent there.
The venue, food, people, cause and wine – a perfect mix for a great evening. The Mayor of Malden was honored as a Disability Advocate of the year and the Speaker of the Massachusetts House of Representatives Robert DeLeo was honored as the Public Official of the year. Listening to what they did and do was a moving thing for a mother. I was very impressed with everyone honored at the event. Knowing what Triangle does was another highlight of the night. I cannot wait to explore the same and share with the Moms Network. I spent my time talking about Anand, Indian families, being a mother and Moms Network. Connected with so many people who promised to help us in a variety of ways.
 My saree was a show stopper for sure. Only Indian woman in the room and on top of that in a saree. I couldn’t have picked a more dramatic attire for the event. I was complimented over and over again and I sure did enjoy that. Many pictures, questions and compliments later I got a chance to take a picture with Speaker Robert DeLeo.

I am still a worried mom but happy to know that there are many out there working tirelessly to make life better for my son and many more.
Please visit them and donate..
https://triangle-inc.org




The generous and fabulous crowd


Robert DeLeo, The Speaker of the house of representative of Mass. Such an honor to be in the picture with a true friend of our community.


Lot of pictures I am sure it wasn’t me it was the saree


Fantastic group for state street folks.



Some of the Triangle Staff, so curious about saree, Moms Network, India and all about our culture and disability, cannot wait to have some meaningful interactions with them

 The beautiful backdrop of JFK library and museum. I wish I had come out to take the picture before the sunset. 



I glittery saree, a gift from a friend and last night It was such a perfect choice for a  beautiful night.







Wednesday, May 1, 2019

a new journey a new experience .


While driving Anand to his class I was taken back to my own memories of college. I went to school in a very small town in MP and couldn’t go away for higher education so from elementary school to college,  my life was shaped in such a “Balaghati” way.
Then 2 decades later I went to college here in Franklin , again a small college in a close-knit town. I took evening classes while working full time so it was not a perfect college education but for me it was an experience in itself. “Continuing Education” was the name of department that conducted the evening classes. It was a better way of saying adult education.
College was always in our mind for Anand, how and when and where came later. But we wanted him to have that experience regardless.
Finally we could put that plan in action this spring semester with Mass Bay community college. Apprehensions and anxiety were part of the game. The session started and Anand seemed to like it. I, as usual don’t get much information and decided to let him handle his schedule and details. A protective mom had to take a step back so he could learn.
It’s been hard not being part of this experience and I feel so helpless knowing very well I have to do this for him. A thought came to my mind to log in and check the status of his homework and what are they teaching in the class. But in the end I couldn’t do it as I am the one who wants an independent son : ) and failing is part of being independent and growing up. He is taking one class this semester, attends class twice a week and seems excited about it. He does his homework and keeps his dad posted.
His first day Dad took him to class but it was Anand who asked and figured out his class and room, went in and talk to his professor. I on the other hand was so restless because neither of them would give me the minute by minute details . The details I so wanted. Soon we got used to his routine.  For the last 3 months, he  has been going early to Mass Bay, waits for an hour for his class and then goes back to Accept (his program),twice a week. I was a worried mom for a couple of week. During the school vacation week I had to take him to his class. I was instructed where to park and shown the way to a waiting area, where I worked for the hour he was in class. I so wanted to talk to his teacher and see the classroom and meet his classmates but as a good mom I respected his wish and kept my nose out of his business, atleast this once.
I ask once in a while about his course and get some responses depending on his mood. One day he told me they would start Excel once they finish Microsoft Word. I quietly mentioned that that’s what I do at work, use excel all the time. The look on his face and shine in his eyes were the best sight of the day, soon they disappeared when I said I could help him with homework. “I will be fine” was the response to that.
This week, he is working on his final project, next week final exam and we are done with his first college class. It has been an amazing journey so far. But at this point I am so ready to move past that and look forward to something exciting.

The morning ritual.. get ready and enjoy the iPad while  waiting for the transport 

        ◦       

      The first day picture.. not a chance .. Mom is happy with backpack picture.



Busy with one of the assignment


 The waiting area..